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Kenny
Don't Stay Home
Posted May 16, 2012 by Kenny in Family & Home, Society, Health
In this political season when we the people are faced with deciding which road to take for this generation, and those that follow, it is easy for many to take the path of least resistance otherwise known as the apathetic route, and proclaim: “politicians…they’re all the same” consequently abdicating their responsibility at the polls. The earth shaking issues tilting the Richter scale are: the economy, jobs, national security, and immigration. Underneath that layer are other issues no less profound, and impact the future of this land of the free, and home of the brave. Social issues seem to be relegated to the second tier of importance, and are looked upon with a snobbish nose of disdain. I ask you to consider a story posted on disabilityscoops.com, by Shaun Heasley , dated May 15, 2012. The headline reads: States Look To End ‘Wrongful Birth’ Suits. Apparently lawmakers from Arizona to New Jersey are looking to sharply limit the ability of parents to pursue legal action against doctors when their children are born with various disabilities, including the one you may have been born with. As I see it, the issues are: a doctors’ legal obligation to inform parents of the possibility of a birth defect, the unborn child’s right to life, and the parent’s choice. Another question to chew on is once a decision is made for or against life, who is affected most? Is it mom, dad, extended family, or in the end, the individual the choice was presumably made for? All of the above considered, one has to ask, if an in the womb procedure were the choice, would that choice have its place in convenience, cost, preservation, or for the sake of the unborn child? I dare not speak for you, or presume I know your belief system, but I would venture to say, that like me, with tears rolling down your cheeks, you have asked on more than one occasion, why God, why was I born this way? The technology available today was not accessible when I was born. If it were, and my mom knew I would be born with a disability, and she made the convenient choice, then I would’ve never have had the opportunity to experience the gift of family, of learning, of singing, of music, of reading, of dancing, of loving, of saying yes, of competing internationally as a disabled athlete, of traveling around the world, of touching the lives of countless people because of my disability, of knowing a wife, children, and grandchildren. If the politics of the day, and the players are disagreeable, then for our society, and culture, go to the polls, and vote for life’s’ sake. It is the social issue of our time.
Tags: It's on you
Finetooner
I was flying to Knoxville this morning on company business when I saw a woman pre-board my flight with what looked like the biggest service dog I'd ever seen. It was a coal-black New Foundland and if you've ever seen one they are one of the largest breeds of dog imagineable. Well, since she was on one of OUR airplanes (ExpressJet) and it is my very business to train airline employees how to serve passengers with disabilities I introduced myself and gave her my business card. She had Multiple Sclerosis and chose her dog on the basis of strength and stability. It seems she has both balance and stamina issues and her dog (his name is Teddy) serves as a support for her as she travels and apparently she travels a lot. Mind you this is on a smaller regional jet (CRJ200)and holds just 50 passengers so the dog seemed to get a LOT bigger as he settled into the bulkhead seating area. Today, I met a really nice plucky lady and still another task that a service dog can do to help an individual overcome obstacles as they travel. Having these meaningful encounters is the BEST part of my job. Now, if they would just double my pay I would have the perfect job.
postnine
“Handicapped I am”



PLEASE don’t call me DISABLED .. “I’m not” .. I can do loads of Stuff
IT just takes a bit longer to get dressed from “in The Buff”


I have a Disability of course ……..I know that is True
But not like a “disabled keyboard” that won’t work for You


I cannot walk but I can still ……“Laugh and Talk”
If you call me disabled I’ll kick off and Sqwark

I’ll race you any day in my “powered wheelchair”
Who’s disabled then ? when I beat you without a care


When playing golf……..we ALL range from bad to Good
ONLY Then would I have no handicap when swinging the Wood


A “disabled car” surely is one that “won’t Start”
“Handicapped I am”……….with a catheter and a Fart


In my limbs of legs and arms….i have “spasticity”
But I can still kick and punch you …if you pity me


For ME “politically correct” you don’t have to Be
“Just please empty my uribag when I’ve had a Wee”
postnine
"Lament for Myelin"
Posted May 15, 2012 by postnine in Health
My poem, “Lament for Myelin” was inspired by the similarity between the name of the protein “Myelin”, that is progressively deteriorating in my central nervous system, and the singer “Myleene” Klass’s first name.
The poem is appreciated by some MS Sufferers (others it made cry) and carers, health professionals that have an understanding of the symptoms of Multiple Sclerosis ie fatique, bladder & erectile dysfunction etc.
“Lament for Myelin” has been published both in the UK by the MS Society & in the USA by the MSSA (MS Association of America). So please Enjoy !!


Lament for Myelin


Myelin Why did you leave me ? I’m not Strong without You

We were so Good Together…We were such an Active Team

I know you can’t return but that doesn’t stop my Dream

I met the Challenge Myelin & replaced you with my Friends

My Friends say you were just another Protein & I must Forget

But it’s so hard to Pee without you and then the Bed gets Wet

We used to Walk Together but now…. I Cannot Walk at All

Instead of Our Strolls Together I’m with my Wheelchair Now

She is my Dear Friend now but Oh How I Miss You.. How?

Remember our Rolls in the Hay & then THAT all went wrong

You took my Man Hood Away but Our Three Kids came first

I Thank you for that Myelin…I Still Love you for that Myelin

When you were with me you were the Best.. But without you

now “ I am Fatigued ……………. & Must Take a Rest


Your Love Dadge
postnine
http://www.dailypost.co.uk/news/north-wales-news/2012/04/30/disabled-man-wins-f ight-against-flintshi...


My Story…My fight with my local authority for an accessible home.

My name is David Jones (“Dadge”) and I live with Primary Progressive Multiple Sclerosis which has left me severely disabled. I have been a wheelchair user now for 10 years but live life to the full. I am 58 years old, a father of three children and grandfather (“Tiddy”) to six grandchildren who love their “wheelchair-rides”.
I have no use of my legs or left hand/arm and I am losing the use of my right hand. I rely on catheters for emptying my bladder and have had half of my large bowel removed due to cancer.
My disability has progressed to a stage where I rely upon a considerable amount of disability equipment for my daily living so I need a fully accessible home. I have a large custom made Bariatric Bed, Heavy Duty Powered Wheelchair, Wet Wheelchair, Manual Wheelchair (for venues inaccessible to my powered wheelchair), Mobile Hoist, Ceiling Track Hoist, WAV and more!!
Flintshire County Council offered me a property which was totally unsuitable to my disability needs. I was told that as I could not get into either of the bedrooms, then I should “Sleep in the Lounge” or get a “Narrower Wheelchair/Smaller Bed”, comments which I found very offensive.
I asked my local authority to reconsider their housing offer but Flintshire County Council went through their review procedure without fully considering my disability needs. They decided that the property was “Suitable” and consequently crossed me off the housing list which left me homeless and living in a homeless hostel. (Ironically in a fully accessible flat !!)
My local authority “disrespected my disability” so I would not accept their decision and with the support of Shelter Cymru and my local MP, David Hanson, I fought back. It took a little over a year to bring my appeal against Flintshire County Council’s housing decision to county court
At the hearing in Mold County Court in April 2012, Judge Milwyn Jarman QC ruled that, Flintshire County Council’s Housing Reviewing Officer had not followed a lawful procedure, and had come to a decision that no reasonable housing authority would make. In doing so Flintshire County Council had failed to comply with Regulation 8(2) of the Allocation of Housing and Homelessness Act 1999 (Review Procedure).

The judge ruled that the council’s actions were a breach of natural justice and consequently quashed Flintshire’s housing decision to discharge their main housing duty to me. As a consequence of the courts ruling Flintshire County Council must put me back on the housing list for accommodation that is “suitable to my disability access needs”.
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